Waardenburg Syndrome

An End To The Waiting Game

By Beth Leipholtz / May 27, 2021 / 1 Comment

I have been holding my breath since January and finally, I can let it out. If I’m being really honest, I’ve been holding my breath since we learned of Cooper’s hearing loss, carrying a weight that has just become part of me. The anxiety that something more is wrong, that your child’s condition may worsen, […]

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Waardenburg Syndrome: Our “Why”

By Beth Leipholtz / November 13, 2019 / 0 Comments

Understanding has always been power for me. If I can understand why something is happening, I feel better equipped to handle it. So of course, when we got Cooper’s diagnosis I needed to know why. Why us? Why him? Why was this happening? But to be honest, I kind of already knew why. I had […]

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